Plea to help send poorly teen to Disney World
The parents of a 14-year-old boy from Rothwell, in Leeds, who has MEN 2A, a type of thyroid cancer that can never be cured, is appealing to their local community to support the charity that wants to treat him and the family to a dream holiday to Disney World, in Florida.
Jordan, was diagnosed with the condition in 2007 when he was just four years old. The shattering news followed the diagnosis of his mother, Denise, with the hereditary condition a year earlier.
The condition has also been passed on to Jordan’s sister, 11-year-old Emma, and they’ve both had to undergo major surgery to remove their thyroid.
Without the possibility of remission from the condition Jordan and his sister, both pupils at Royds High School in Rothwell, have regular blood tests and cancer screenings at Leeds General Infirmary.
To get some much needed relief from the stresses of the condition parents Richard and Denise, decided to apply for a place for Jordan on Caudwell Children’s annual Destination Dreams holiday to Disney World, in Florida.
The charity created Destination Dreams in 2007, to give 25 children, with life threatening conditions the opportunity to experience a ‘Dream’ holiday to Disney World.
Richard says that the family was delighted when Jordan and the family were offered a place on the trip, but now due to a funding shortfall the race is on to raise the necessary funds to cover the cost of the holiday.
As Richard explained: “We were amazed when we found out that we had been selected for the trip, we simply couldn’t believe it.
“The families are really well looked after as the charity provide a dedicated team of paediatric doctors and nurses who are available 24/7. They also take along over 40 volunteers to assist families around the theme parks.
“Because of the associated costs of taking very poorly children overseas the charity has to pay, on average, £10,000 per family.
“However, with the trip scheduled for February 2018 the charity recently informed us they’ve had to push it back to December 2018 as they hadn’t been able to raise the required £250,000.
“So the families on the trip have all decided to appeal to our local communities to help get us on that plane to Florida.“
The holiday is even more important to the family as Richard, an ex-motorway traffic officer, has recently received some shocking news from his doctor. As he explained: “I gave up work to care for the family full-time.
“However, I began to feel week and fatigued and my condition wasn’t getting any better. I paid a visit to my GP and after several tests at the hospital I was told that I had multiple sclerosis! It’s a true nightmare and we just can’t believe it.
“It’s a progressive form of MS and I’ve been told that my condition could rapidly worsen or I could more slowly deteriorate.”
Richard, who now has to use a wheelchair, says his condition makes the holiday that much more important to the family. He said: “We’ve had such awful luck, my brother also died at the age of 37 with skin cancer, but we’re determined stick to the nice things in life. The trip will allow us to create some magical memories together away from hospital visits and doctors appointments.”
Trudi Beswick, Chief Executive from Caudwell Children, is urging the community to get behind the family’s appeal. She said: “For many families caring for children with terminal or life-threatening conditions the thought of leaving the protected environment of their own home town, and their medical support, fills them with dread.
“By providing 24 hour professional medical provision and a team of volunteers, for the duration of the trip, Destination Dreams gives families the chance to create happy memories, often for the first time!
“Unfortunately, the level of assistance that the families need doesn’t come cheap. That’s why it’s vital that Jordan and the family get the fundraising support that they so desperately need and deserve.”
You can support Jordan through his Just Giving page here.
You can also donate by texting: PEAL57 then the £amount to 70070